Resources

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At Dementia Home Consultancy Group, we are aware there is a vast amount of information about dementia available online. To make it easier for you to access the information quickly, we have produced

RESOURCE INDEX

General Advice and Info
Equipment and Home Adaptation
Financial Matters
Housing with Care Options
Meaningful activities for physical and mental health
Safeguards
Practice Development and Innovation, Policy and Research

General Advice and information

Alzheimer’s Society – about dementia/getting support/research
Age UK – money and legal/health and wellbeing/care and support/travel and hobbies/work and learning
Carers UK – help and advice for carers
Carers Trust  – specialist services for carers (including young carers) of people of all ages and conditions and a range of individually tailored support and group activities
Citizens Advice – advice service covering benefits/work/debt and money/consumer/family/housing/law and courts/immigration/health
Dementia UKDementia helpline 0800 888 6678 run by dementia specialist admiral nurses, for anyone with a question or concern about dementia
Disability Law Service – provides free legal advice to people with disabilities and their carers to ensure that they have access to their rights and justice
Gov.uk – A-Z of information for disabled people
Grey Matters Consultancy – bespoke bespoke, professional document and form preparation (e.g. benefits applications and wills), giving unrivalled care and attention for each client
NHS – A-Z information on living well/care and support/health
Silverline – free confidential helpline 0800 4 70 80 90 providing information, friendship and advice to older people, open 24 hours a day, every day of the year
Tuck – aims to improve sleep hygiene, health, and wellness through the creation and dissemination of comprehensive, unbiased, free resources
Young Dementia UK – charity that helps people whose lives are affected by young onset dementia

Equipment and Home Adaptations

At Dementia – provides information on assistive technology that can help people with dementia live more independently
Telecare Choice – alarm service for elderly people who live alone to enable them to call for help
Telmenow  – technology for independent living
OXO Good Grips – innovative consumer products that make everyday living easier

Financial matters

Society of Later Life Advisors (SOLLA) – helps people and their families in finding trusted accredited financial advisers who understand financial needs in later life
Turn2Us – information on benefits, grants and other resources for older people
Plan with Care – Care and Financial Planning so that you can make the most out of later life

Housing with Care Options

Care Quality Commission – checks whether Hospitals, Care homes, GPs, Dentists and Services in your home are meeting national standards
Co-housing Network (UK) – umbrella organisation for established and forming cohousing groups
First Stop – Care and Support at home – factsheet on social care
Housing LIN    leading ‘knowledge hub’ for a growing network of housing, health and social care professionals in England involved in planning, commissioning, designing, funding, building and managing housing with care for older people
Lifetime Homes – adaptable design for life
Pathways through dementia – provides free, accurate legal and financial information to support people living with dementia
Which – later life care – living with dementia, treatment and getting support
Healthwatch  – how to make a complaint about the NHS or adult social care services
Youla – dedicated homecare to maintain independent living

Meaningful Activities

Active Minds – activity products for dementia
AcTo Dementia – recommendations and guidance on accessible screens apps for people living with dementia
Alive – lighting up later life – a charity dedicated to improving the quality of life for older people in care
Arts4Dementia – empowering people with memory loss through artistic stimulation
Borrow my doggy – Matching dog owners with local borrowers for walks, sitting and holiday care
Casserole Club – home cooked food, made by neighbours, for neighbours
Dementia Adventure – specialise in designing and delivering small group short breaks and holidays for people living with dementia.
Dementia Engagement and Empowerment Project (DEEP)  – brings together groups of people with dementia from across the UK, and supports these groups to try to change services and policies that affect the lives of people with dementia
Driving Miss Daisy – provides a caring, safe and reliable community companion service that can drive someone wherever you wish to go
Meet Up – makes it easy for anyone to organize a local group or find one of the thousands already meeting up face-to-face
My Living Will – helps individuals and professionals understand and take decisions about care towards the end of life, to help everyone to have choice and control over their lives
Nextdoor – neighbours helping each other. Stay informed on what is going on in your neighbourhood.
Songhaven – a professional concert series in central London that welcomes people living with dementia or memory loss as well as their carers and companions
Streetbank – share things with your neighbours
Talking Mats – improving the lives of people with communication difficulties by increasing their capacity to communicate effectively about things that matter to them
Unforgettable – memory and dementia product specialists
University of The Third Age (U3A) – learning co-operatives for older people no longer in full time work, providing opportunities for their members to share learning experiences in a wide range of interest groups and to pursue learning not for qualifications, but for fun

Safeguards

Action on Elder Abuse– provides advice, guidance and casework to victims, their families and friends, and to practitioners, through their helpline 080 8808 8141
Staying In Control When You’re Older – know what signs to look for and what to do if you suspect neglect or abuse are happening

Practice Development and Innovation, Policy and Research

Alzheimer’s Disease International – global information and knowledge on dementia
Association for Dementia Studies – research and education to build evidence-based practical ways of working with people living with dementia and their families that enables them to live well
Barbara’s story – created by nurses at Guys and St Thomas’ to raise awareness of dementia among staff, Barbara’s story is a series of 6 films which has changed attitudes to dementia in hospitals across the world
Baycrest – global leader in developing and providing innovations in aging and brain health
Campaign to End Loneliness – tackling loneliness in older age
Care’n’Share – website that provides access to good care practices in residential, live-in, domiciliary, acute, day service and family
Care Fit For VIPS – free, safe, easy-to-use online toolkit that gives you everything you need to get started on understanding and implementing person-centred dementia care
Centre for Policy on ageing – independent charity promoting the interests of older people through research, policy analysis and the dissemination of information
College of Occupational Therapists – promoting the unique value and benefits of occupational therapy to the public, service commissioners and political representatives
The Contented Dementia Trust – helps those who have already been diagnosed with some form of dementia, and their carers with practical help and resources
The Conversation Project – dedicated to helping people talk about their wishes for end-of-life care
Created out of Mind – aiming to explore, challenge and shape perceptions and understanding of dementias through science and the creative arts
Dementia Action Alliance – Organisations across England committed to transforming the lives of people with dementia and their carers
Dementia Diaries – national series of audio diaries that document the day-to-day lives of people living with dementia
Dementia Friends – Alzheimer’s Society programme to change peoples perceptions of dementia
The Elders – independent global leaders working together for peace and human rights
Experience-led commissioning (ELC) – a new way of approaching commissioning, service redesign and whole system change, which is evidence based and driven by the ambition to deliver a fantastic care experience
Growing Support  – social enterprise tackling loneliness, social isolation and inactivate through social and therapeutic horticulture activities for older people
Health Talk On-line – database of personal and patient experiences through in-depth qualitative research into over 50 different illnesses and health conditions
Innovations in Dementia  – innovative ideas to improve quality of life for people with dementia
International Longevity Centre UK – leading think tank on longevity and demographic change
Joseph Rowntree Foundation – charity that funds a large, UK-wide research and development programme, seeking to understand the root causes of social problems, to identify ways of overcoming them, and to show how social needs can be met in practice
The Kings Fund – a charity that seeks to understand how health system in England can be improved
Magic Me – arts charity that brings the generations together to build a stronger, safer community
Mental Health Foundation – working for an end to mental ill health and the inequalities that face people experiencing mental distress, living with learning disabilities or reduced mental capacity
My Home Life – a UK-wide initiative that promotes quality of life and delivers positive change in care homes for older people
National Development Team for Inclusion (NDTI) – works to promote inclusive lives for people who are most at risk of exclusion and who may need support to lead a full life
National Institute for Health and Care Excellence (NICE) – provides national guidance and advice to improve health and social care
NHS England –  leads the National Health Service in England, setting priorities and direction and encouraging national debate into health and care
Participle – addressing the big social issues of our time, working to create new types of public services
Prime Minister’s Challenge on Dementia 2020 – next phase of the Prime Minister’s challenge on improving care for people with dementia
Patient Opinion  – An independent site about your experiences of UK health services, good or bad, where your stories are passed on to the right people to make a difference
Pippa Kelly – Pippa’s blog where she writes about the elderly, their care and its funding, and about dementia
Salford Institute for Dementia – international centre of research, education and innovation in dementia-care
Skills for Care – employer-led workforce development body for adult social care in England
Social Care Institute for Excellence – improves the lives of people who use care services by sharing knowledge about what works
Taos Institute – community of scholars and practitioners concerned with the social processes essential for the construction of reason, knowledge, and human value. Author of the wonderful Positive Aging newsletters
Tom Hussey – Photographer’s stunning series called ‘Reflections’ relevant to reminiscence and identity
Transitions in later Life a blog that is part of an online engagement to assist the Calouste Gulbenkian Foundation (UK) to identify ways of supporting people through ‘Transitions in Later Life’. It will focus on preparing for retirement and beyond, as well as support for people’s emotional and psychological wellbeing in later life transitions
Together in Every Day Dementia (TIDE) – enables a diverse range of carers to have a powerful collective voice, which raises awareness of their unique needs and rights, ensuring that these influence practice, policy and research at all levels
Un Ltd – a charity supporting social entrepreneurs
Wandering in Familiar Spaces – website created as part of Abigail Joshi’s masters dissertation titled ‘The Architecture of Madness’, in which she explored the relationship between architecture and its effect on the human psyche

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